Familial Chylomicronaemia Syndrome (FCS) is an ultra-rare condition affecting 1 to 2 in a million people (that's around 120 in the UK).  People with FCS can't process the fat in their diet which travels around their blood as triglycerides.  These clump together as chylomicrons making the blood milky white and causing symptoms, including severe abdominal pain and pancreatitis. 

To try to minimise the symptoms people with FCS need to eat less than 15g fat in a day, restrict added sugar and drink no alcohol. This is very difficult to do and inhibits a 'normal' life.  Patients often feel socially excluded and isolated. 

I was inspired to set up a charity to enable patients to meet each other and provide mutual support, to raise awareness of the impact of the condition with healthcare professionals and the wider public, and to advocate for excellent care and access to new medicines.  The charity is run completely by volunteers.  Please support us by making a donation, everything helps, no matter how small.

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