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a little on why this charity is so close to my heart
my son is pretty amazing, in the first few weeks of life he went through, pseudomonas, e-coli, sepsis, a lung collapse and was intubated!
in february 2009 my son was born with meconium ileus (blocked bowels) he was taken to a different hospital and had many contrast enemas which all failed :( when he was 3 days old they decided to operate on harrison's bowels to unblock them, which sadly failed, they carried on with the enemas but still didnt look good. at 2 weeks old doctors were pretty much giving up on him but after the weekend the doctors decided they would operate on him one final time! :) it worked my son had finally done his first poo a few days after and the test results came back as him having this awful life shortening disease cystic fibrosis. i finally took him home when he was 8 weeks old!
having a baby at 20 and being told that your baby had cystic fibrosis was a big blow, you dont realise how many sick babies there are out there until you go through it yourself, but being a mum made me get on with it as i would do anything for him and wouldnt be without him.
his life consists of creon 10,000, anti-biotics, nebs, inhalers and 3 different vitamins omeprazole and a lot of physio and exercising. he gets on with it and takes them all quite easily, it is life to him.
in march 2011 he went down with distal intestinal obstruction syndrome, dios for short which is the adult version of meconium ileus. he got tranferred to bristol hospital as our local poole hospital doesnt do children operations of this sort.he thankfully bypassed the operation as an enema worked within 10 mins :) there have been scary times in his life but we get on and deal with it because we have to an we want to! i love my son to bits and the cf trust are so close to finding the cure for cystic fibrosis we can't give up now we need the 6 million for gene therapy to go ahead!!!
thanks for reading a bit about my sons life hope it hits home to those of you that have children or would like to have children that there are sick kids out there that need your help and would love to experience a longer life than what is planned for them!
get donating people its much appreciated you dont know how much this means to the families of and people with cystic fibrosis!