The surgical procedure called Selective Dorsal Rhizotomy (SDR) is to try and give Maddi some quality of life and to hopefully keep her walking for a while longer. SDR is not available in the UK for Maddi’s disease, but the world leading specialist Dr Park at St Louis Childrens Hospital has already treated other patients with Hereditary Spastic Paraplegia successfully and so many CP children with some fantastic results, he has suggested this would be a good option for Maddi. 

Maddi’s Story has become very important to our family after my daughter Alice completed the London to Brighton bike ride and the 100 miler for Maddi so therefore i wanted to do my bit in supporting her and her family’s efforts in raising money for her foundation.