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87 %
£437.00
raised of £500 target
by 9 supporters
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Linda Atkinson avatar
Linda Atkinson

Follow Freya's Footsteps

Fundraising for Muscular Dystrophy UK

87 %
£437.00
raised of £500 target
by 9 supporters
Donate
  • Event: Follow Freya's Footsteps, 30 Jun 2018

Congenital Myotonic Dystrophy Fight Fund

Raising money to fight Congenital myotonic dystrophy

Charity Registration No. 205395 (England and Wales) - SC039445 (Scotland)

Story

my grandaughter Freya has congenital myotonic dystrophy which is  rare form of muscular dystrophy. She is 5 years old and this year has gained enough strength, courage and confidence to walk unaided. To celebrate  this achievement she is doing a sponsored walk from Blackpool north pier to central pier to raise funds for congenital myotonic dystrophy fight fund to help fund essential research into the condition that will hopefully lead to a cure.

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