my grandaughter Freya has congenital myotonic dystrophy which is  rare form of muscular dystrophy. She is 5 years old and this year has gained enough strength, courage and confidence to walk unaided. To celebrate  this achievement she is doing a sponsored walk from Blackpool north pier to central pier to raise funds for congenital myotonic dystrophy fight fund to help fund essential research into the condition that will hopefully lead to a cure.

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