<p>Its hard to believe that over 8 years have gone by since we got told our beautiful boy Joey born on my 30th Birthday the 15th June 2005 has a servere muscle wasting illness and we will be 'lucky' to have him here by his late teens... <br><br>8 years later there is so much realstic hope out there, many trials are happening, research is moving forward and we still feel very lucky and blessed to have such a happy , cheeky little boy. <br><br>The support we have recieved over the last 8 years has been humbling, and the funds raised has contributed to serveral research projects /trials. <br><br>Unfortunaly this is a race against time, Joey occasionaly needs to use a manual wheelchair and is slowly getting weaker, we need to continue to fund trials to keep the dream alive. <br><br>Every penny you raised wil go to fund research / clinical trials...<br><br>thank you so much for all your support... for more information please go to <a href="http://www.duchennenow.org">www.duchennenow.org</a></p>