Marie Gilbert
Marie's Climbing the O2
Fundraising for Muscular Dystrophy UK
Story
Thanks for taking the time to visit my JustGiving page.
My son Marcus is a typical 8 year old and loves Minecraft, playing his PS4 and watching Stampy and Dan TDM. He is such a little character! He can be shy but don't let that fool you as once you get to know him you will see he is a mad, crazy, loud at times, cheeky, funny, kind, caring always smiling little boy that I love with all my heart. BUT what you won't see is his muscles are slowly weakening and wasting away. This is because he has Duchenne Muscular Dystrophy.
Children are typically diagnosed with Duchenne muscular dystrophy between the ages of two and seven, however Marcus hit all his physical milestones before the average age, although we did notice that he was slightly slower than his friends.
Our concerns grew after a friend from pre-school days got in touch after her son was diagnosed with Duchenne muscular dystrophy. Marcus went for x-rays in 2015 and while these came back showing nothing was wrong, We were still concerned and Marcus was referred to specialists and sent for blood tests. In July 15 2016 Marcus was diagnosed with Duchenne muscular dystrophy. This condition affects 2500 children (primarily boys) in the UK and many will lose the ability to walk before they reach their teenage years. Duchenne muscular dystrophy affects all muscles in the body, including the heart which causes heart and breathing problems later in life. The average life expectancy is mid to late twenties. There is currently no cure.
We want to raise as much money as possible to fund research into a cure and treatments in the hope that increased funding will result in a much better outcome for Marcus and all other boys living with Duchenne muscular dystrophy.
Please leave a kind donation, or join the Moving Muscles for Marcus fundraising team today, and help make a difference for Marcus and others because muscles matter.
Lots of love
Marie XX
My son Marcus is a typical 8 year old and loves Minecraft, playing his PS4 and watching Stampy and Dan TDM. He is such a little character! He can be shy but don't let that fool you as once you get to know him you will see he is a mad, crazy, loud at times, cheeky, funny, kind, caring always smiling little boy that I love with all my heart. BUT what you won't see is his muscles are slowly weakening and wasting away. This is because he has Duchenne Muscular Dystrophy.
Children are typically diagnosed with Duchenne muscular dystrophy between the ages of two and seven, however Marcus hit all his physical milestones before the average age, although we did notice that he was slightly slower than his friends.
Our concerns grew after a friend from pre-school days got in touch after her son was diagnosed with Duchenne muscular dystrophy. Marcus went for x-rays in 2015 and while these came back showing nothing was wrong, We were still concerned and Marcus was referred to specialists and sent for blood tests. In July 15 2016 Marcus was diagnosed with Duchenne muscular dystrophy. This condition affects 2500 children (primarily boys) in the UK and many will lose the ability to walk before they reach their teenage years. Duchenne muscular dystrophy affects all muscles in the body, including the heart which causes heart and breathing problems later in life. The average life expectancy is mid to late twenties. There is currently no cure.
We want to raise as much money as possible to fund research into a cure and treatments in the hope that increased funding will result in a much better outcome for Marcus and all other boys living with Duchenne muscular dystrophy.
Please leave a kind donation, or join the Moving Muscles for Marcus fundraising team today, and help make a difference for Marcus and others because muscles matter.
Lots of love
Marie XX
