This is where just a few minutes of your time could really help towards changing the rest of Mae's life - Turning dreams into reality!!....please read....
Mae- She always has a smile even though her days are ten times harder than mine. This is why I'm doing The Great North Run 2013 to help raise enough cash in order to give her a fair shot and to carry on and inspire whoever she comes into contact with....
Mae was born on 10th May 2009, after a complicated delivery. Mae was almost 7 weeks premature weighing just 4Ib 11oz. Mae spent the first few weeks of her life in Doncaster 's Special Care Baby Unit.
Mae's parents recognised problems in her development before they were apparent to professionals. She was then assessed by the paediatric team. She was referred to an ophthalmologist where Mae's parents gave details of her birth history. Mae was diagnosed with delayed visual maturation and a divergent squint. Her Doctor also requested that she should have an Mri scan on her brain just after her 1st birthday.
An Mri scan was performed on 05.07.2010. Results followed showing injury to her brain. Mae was then diagnosed as having Spastic Quadriplegic Cerebral Palsy. So lots of intervention was put into place. Mae attended our local hospital weekly for 2 1/2 years and a specialised nursery weekly too. She had a great start in helping her to reach her potential.
Mae has made fantastic progress and persists to amaze those close to her always with such determination. She tries so hard to work against her condition but no matter how hard she tries she cannot stand or walk independently. Mae has difficulty moving her legs and problems with her posture due to bad signals from her brain to her muscles. In addition, the spasticity (tightness) in her legs cause discomfort, this will worsen as she grows. Mae would love to be able to do the things that most others take for granted. She would love the chance to ride a bike or perhaps a scooter, to bounce on the trampoline with her friends (which she has done in her wheelchair before now), to run into the garden with her brothers whilst her Dad is at work and her Mum prepares food and play/kick a ball instead of having to sit by the door. She would also love to be able to dance to music without the discomfort of burning her knees on the floor. Mae goes through life with her infectious smile (As Great Grandma says '' A smile that lights up the room''). It would be Mae's ultimate dream to stand and walk independently.
Now there is hope:
Mae has been accepted for a life changing operation called Selective Dorsal Rhizotomy at St Louis children’s hospital Missouri by Dr T s Park who has been doing this specialised procedure for more than 25 years and has operated on more than 2,000 children from 43 countries. Dr Park holds a 100% success rate. The surgery will permanently reduce Mae's abnormal muscle tone. Her sitting and standing postures will also improve. As will her balance, endurance and levels of comfort. For all these reasons Mae would be a very good candidate and the operation will help her significantly.
To further help Mae bring her dreams to reality we need to raise £70,000.
So I have signed up to The Great North Run 2013 for this fantastic cause and I need you help - Please Donate - Every little will make the biggest difference to Mae!!
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