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Cotswold Way MAD Challenge · 20 June 2015 to 21 June 2015 ·

SMA is a genetic disease that affects motor neurones. 1:40 of us is a carrier and in its most severe form children rarely live beyond 2 – making SMA the leading genetic cause of death in babies and toddlers. The SMA Trust is solely dedicated to funding research into a cure and treatments for SMA

Story

Thank you for taking the time to visit our JustGiving page and donating to this cause which is very close to our hearts. We lost our beloved grand-daughter Lily Bea to SMA, when she was only nine months old. Although classified as rare, SMA is the leading genetic killer of infants and toddlers. One in 40 to 60 people is an SMA carrier, i.e. approximately 1.5 million people in the UK. One in every 6,000 to 10,000 births is affected by SMA.

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Donation summary

Total
£982.00
+ £238.00 Gift Aid
Online
£982.00
Offline
£0.00

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