Story
Thanks for taking the time to visit my JustGiving page.
Where to start. I guess with being about 20 weeks pregnant. ( Not now 🤦♀️- back in 2016.) I was told during a routine scan that our perfect baby boy had cysts in his right Kidney, a condition called Multi-Cystic Dysplastic Kidney (MCDK)- and this would need further monitoring during pregnancy. Cue furious research consultations with Dr. Google and we were, needless to say, panicked enough to book a private scan to investigate further. Hoping for better news, we were given worse. It appeared that cysts were also present in the baby's left kidney, a condition known as Bilateral Multi-Cystic Kidney and we were told this was a condition that was 'incompatible with life'. Our baby wouldn't survive birth, because his kidneys wouldn't be able to function enough to help produce amniotic fluid which would in turn help the lungs develop ( I recommend doing some reading into the condition for a much better explanation than the one my tired brain can offer!). I can say that- hand on heart- was the worst day of my life. I remember, painfully with such clarity, both Ross and I standing in that Cambridge car-park, not knowing what to do next.
Thankfully, and to cut a very long and complex story short, that scan was wrong. Our babies left kidney was doing ok, and after lots of monitoring and support from our AMAZING NHS, we welcomed our miracle baby Freddie-Bug into the world with his one awesome left kidney. His first year was a scary one, lots of visits to the hospital for UTI's including a couple of hairy ambulance rides and lots of trips to the Doctor, plus antibiotics every day until hers strong enough to fight any infections on his own. Family and Friends will remember just how tough that time was. But they will also smile at just how much our little resilient, happy, tornado of energy has bounced his way through his first 3 years on this planet like nothing ever happened. Our one- kidney wonder kid, braver than anyone I know. My life's best work and my inspiration.
We feel really lucky that our Fred is thriving, he is happy, he is bonkers- and he is well. Not everyone has our luck. I would like to give a little something back to Kidney Research UK as we have benefited from the amazing work they do, and we will continue to lean on them for the rest of Fred's life. In order to do this, I set myself a goal to walk 62 miles in the Peak District in July of this year. The problem is, I'm a bit out of shape. EVERYTHING HURTS. 3x Lockdowns have not been kind- neither has the gin. 62 miles is a really long way and it's going to hurt. And I'm a wimp. But I will be doing this with two strong ass sisters, Terri and Steffie who've got my back ( and will possibly be carrying my back, and my front if it all goes wrong!). Training has begun, 5 x a week to prepare for the 62 mile trek in 24 hours 😱. Let's Go 💪💪
Nows the bit where I plead for your help. I want to raise £600 for my charity. I'm desperate to do this for my little boy, my Fred to show him just how proud I have been to be his mummy every day since the day he came into this world. I'd love it if on that day, on the 24hrs of that challenge, I could make him a bit proud of me to. Please Please Please help me reach my goal. Thank- you. 🙏🙏
This is for you One- Kidney Wonder Kid- love you infinity. 💙
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