Ella's page

Nicola Child is raising money for Reverse Rett
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Friends of Ella is set up to raise money in the name of Ella Child who suffers from Rett Syndrome. · 1 November 2012

Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Story

My name is Ella and I am eleven years old.  When I was two and a half I was diagnosed with Rett Syndrome.  I stopped speaking and have lost the use of my right hand.  I get very anxious and have very little understanding of the world.  I am still able to walk about at the moment but that may change, similarly I can still eat without the use of a tube but that may also change.  I have symptoms of Cerebral Palsy, Parkinsons and Autism, as well as other challenges that Rett Syndrome produces.

I am generally a happy little girl who likes very much to be around my twin sister Jess and the rest of my family.  My Mummy says I bring joy to everyone I meet with my beautiful smile and infectious giggle.

Please donate as much as you can afford to Rett  Syndrome Research Trust UK to help find a cure for me and all the other girls out there suffering from this terrible disorder.  

Thank you.  Ella x

Donation summary

Total
£19,301.00
+ £1,065.50 Gift Aid
Online
£5,325.00
Offline
£13,976.00

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