Thanks for taking the time to visit my JustGiving page.
I am doing a dechox similar to the BHF event but mine will be refraining from lots of things for the whole of March and raising money for HAEUK who support me and others with HAE/AAE - a hereditary condition that has impacted greatly on my life.
What am I giving up...chocolate, fizzy drinks, buscuits, sweets (apart from sore throat/cough sweets), crisps, meal deals, buying bags/purses, takeaways, lattes, cappuccinos. Those that know me know that this is a difficult task but needs to be done. For the whole of March....I must be mad - why choose a month that has Easter in it!?
What is Hereditary Angioedema (HAE)?
HAE is an inherited condition. If a parent has HAE, there is a 50% chance they will pass it on to their children. Family members who have been tested and who do not have HAE will not pass the disease on to their children.
HAE can also occur with no family history as a spontaneous gene mutation.
HAE is characterised by huge swelling of the tissues (angioedema) which last from 3 to 5 days. These swellings can occur on any part of the body; hands and feet, arms and legs, trunk, intestines, genital organs, face, tongue, neck and airway.
HAE attacks can start at any time from early childhood, in adolescence or later in life.
The frequency of attacks can vary from once or twice a year to every few days in the most severely affected patients.
Intestinal swelling causes sickness and diarrhoea and very severe pain.
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