My amazing and kind sister Gayle was taken by complications from this terrible disease at just 35 years old. Even when Gayle was in terrible pain, she still thought of others and made every effort to keep upbeat.  This charity funds essential research that may hopefully one day prevent others having to endure years of pain. Even if you only donate a euro or a pound,  please take a moment to read about this charity, and the amazing work they continue to carry out.