Motor Neurone Disease has been in the news thanks for some high-profile rugby players falling victim to this disease.

However, it is not a widely understood disease both by the general public but also health practitioners as it is not a common disease.

Harry Christer, my father-in-law was diagnosed with MND in January 2020 and was given 18 months to live. 

He was a keen golfer, very handy with a drill and always ready to go to any sort of social event. Over the following 24 months I saw him loose his ability to play golf, to drive, to speak, to use his hands, to swallow and eat & drink normally. I witnessed the battles to get him the care he needed as sadly this is yet another disease where care can be a postcode lottery.

Harry continued to be as independent (and stubborn) as he could be whilst slowly loosing bits of his independence. He was sadly admitted to hospital on Christmas Day morning 2021 and sadly passed away on 28 December.

I ran the Firelighter Ultramarathon around 57km of the Anglesey Coastal Path in 2021 for myself. This September I will be running it for Harry and to give much needed money to the Motor Neurone Disease Association to help them research drugs and treatments to fight this cruel disease, and to educate those people who need to know more about what MND is and how to help those with this disease.

If you've read this far, thank you and any donation, no matter the size will be appreciated.