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Elly Hulance

Gareth + Elly's Grand Hair Shave!

Gareth + Elly are shaving their heads for Joseph's Goal because kids with NKH need research more than we need hair

67 %
£3,391.17
raised of £5,000 target
by 98 supporters
Donate

Joseph's Goal

Joseph Michael Kendrick is 10 years old and has Non-Ketotic Hyperglycinemia, a rare genetic disorder that affects one in 60,000 new-borns. The condition is so serious that less than 500 people in the world are living with it. Joseph’s Goal has been set up to raise funds and awareness into NKH.

Charity Registration No. 1151548

Story

Update #2:  YOU GUYS! Gareth and Elly will be BALD! It's happening! Thank you to everyone who donated, we're grateful, we did it!! We hit £3k!! Next goal: £5k, to see Gareth SHAVE HIS BEARD! Stepping it up! Get involved x

Update: We did it!! We hit £1.5k!! Gareth and Elly will be getting number 2's on the 29th of Feb!  Next goal: £3k, to see us use razors. Get in! 

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You all know Gareth, six foot ginger ninja who stopped cutting his hair in 2015, back when he became a nomad. He has beautifully long, curly, red hair that makes him look a bit homeless when he doesn't style it. 

Elly also has long hair. She's been growing hers since Feb 2014, when Sam asked her to marry him. It's long - mermaid length. 

So, in the name of NKH Research, they've committed to SHAVING THEIR HEADS for charity. 

Here's them rules:
1. If we reach £1500, Elly and Gareth will both get number 2's done on the 29.02.20.

2. If we reach £3000, Elly and Gareth will use razors, and be completely, 100% bald up top. 

3. If we reach £5000, Gareth will ALSO shave off his beard. Woah buddy! 

Get involved. The more money we raise, the more likely it'll is you'll see Gareth as a tall hair-less potato. You KNOW this is something you want to see! 

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We're raising money for NKH Research. Nonketotic Hyperglycinemea (NKH) is a rare and terminal metabolic disorder that affects children. It means they can't process glycine, which is a neurotransmitter. Toxic levels of glycine cause the neurones to overfire and die, causing brain damage.

This is shown as seizures, severe global developmental delay (delays in physical, intellectual and social development), low tone, causes children to be severely disabled.

Joseph's Goal supports Prof Nick Greene at UCL in London, who is the closest to a clinical trial for gene replacement therapy - a treatment which would radically improve the quality of life of kids with NKH.

Because NKH is so rare and is funded by families, every single penny helps. Every single pound raised has a tangible effect on what can be done. The funds raised by families last year sped up research by 18 months - this is significant, when 80% of children with NKH don't see their first birthday.

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