Hi, thanks for visiting my fundraising page.

I am riding in a London to Paris cycle challenge between 27th and 29th September in aid of Action for A-T, a charity that has been set up by Emily & Toby Read, whose daughter Evie was diagnosed with Ataxia-Telangiectasia ("A-T") in 2010.

A-T is a rare, neurodegenerative condition that starts in early childhood and leads to severe disability and premature death. There is currently no cure and nothing can be done to halt its progression. Babies are born ‘normal’ and then slowly, from around the age of five, they start to lose their independence. A wheelchair is usually needed by the age of ten, and in many cases, a feeding tube is necessary by the age of twelve.

The immune systems of children who suffer from A-T are compromised and they often do not live beyond their teens. They usually die of  cancer or a severe respiratory infection.

A-T has been described as having the worst symptoms of four diseases: cerebral palsy, muscular dystrophy, cystic fibrosis and cancer. Studies show that children who are affected by this debilitating disease do not lose any of their mental capacity and over time they effectively become imprisoned in their deteriorating bodies.

If you would like to learn more about A-T, please click on the following link which contains a four minute video presented by Jonny Wilkinson, Action for A-T's patron :http://player.vimeo.com/video/49473404.

The money I am raising for Action for A-T will be used to research A-T with a view to finding a cure or treatment that will delay its devastating effects. Emily and Toby Read are hopeful that, if a cure cannot be found in time to help Evie, that their efforts will help other children whose lives are affected by A-T. 

Through Virgin Money Giving, you can sponsor me and your donation will be quickly processed and passed to Action for A-T. Virgin Money Giving is a not for profit organisation and will claim gift aid on a charity's behalf where the donor is eligible.

I really appreciate all your support and thank you for your donation.