Walk up Skiddaw for Baby Ruby

Walk up Skiddaw in memory of our much loved and wanted baby · 10 June 2017
This week we lost our baby due to medical abnormalities, our baby had alobar holoprosenphaly and also very likely had a chromosome syndrome. We don't know the full extent until we get the cytogenetic results. Going through this has been the hardest thing we have ever gone through. We were told our baby had no chance and would either die before birth or very shortly after the birth. We were told the recommended thing to do was have medical termination. This was horrific and the way were treat by health professionals was awful. Until I complained we were given no respect or support, I don't want any other parent to ever go through this, it's bad enough without the support of midwives and doctors etc!
We have since had our diagnosis, Ruby had Trisomy 13, which together with the alobar holoprosenphaly and the septated cystic hygroma meant that she would have died before or at birth and would have suffered greatly I wish more than anything that we didn't have to make the decision that we did but it was out of our hands
This is why I am fundraising for Sands, the stillbirth and neonatal death charity, operates across the UK: supporting anyone affected by the death of a baby; working in partnership with health professionals to ensure that bereaved parents and families receive the best possible care; and promoting improvements in practice and funding research that could help to reduce the loss of babies’ lives. We depend on the amazing energies of our supporters to raise the vital funds that we need to deliver the wide range of services that we offer. #TeamSands
I just want to add that our baby was wanted and loved and will always be loved. I will be updating this page with our baby's name when I get the results I need. If you can donate even £1 I would be so grateful. SANDS helped me by emailing and offering support. And I would like to give something back. We will never ever forget our angel baby.
As an add on we have been badly let down by the NHS, they messed results up and left me with a uterus infection and told me "unlucky only 2% of women get this from the induction and you've got it" we are taking the matter further. Not good that at a time where we should've been peacefully grieving we have had to fight and fight for the correct treatment.
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