CDKL5 is a rare genetic disorder that causes early onset epilepsy and affects brain development. There are only 75-100 children with this condition in the UK. 
CDKL5 is a national charity that helps raise money to help support children that live with the condition and helps raise funds for vital research. 
I am running this marathon to help promote awareness of CDKL5 UK so any support is much appreciated. 
Thanks guys, 

George and Evie