Hellooo friends!

In October (3 weeks away lol) I will be taking part in the Manchester Half Marathon running 13 miles. I would like to raise money for the charity Debra which supports those suffering with Epidermolysis Bullosa and is very close to my heart. Here’s why…

Epidermolysis Bullosa (EB) is a group of genetic skin conditions that cause the skin to blister and tear at the slightest touch.

Those born with EB have skin so fragile they are called 'butterfly children' – their skin is quite simply as fragile as the wing of a butterfly.

Tragically, certain types of EB can be fatal in infancy and others are severely life-limiting. It is estimated that more than 5,000 people are living with EB in the UK, and 500,000 worldwide.

A few of you will know this is something I have had to live with. I count myself lucky though to only suffer from a mild form that affects my feet. Whilst it can be incredibly painful especially in the warmer months, I’ve never let it stop me doing anything.

When I was younger, I was told Id never be able to run a marathon. So, me being difficult wrote down a goal at 14 “run a marathon and prove everyone wrong”. 

Hopefully in completing this half marathon I will help raise awareness and money for the research of this condition, as well as being half way to achieving a bigggg goal! ANY DONATIONS AT ALL I would appreciate very very much!!!

Thank you anyone who’s taken the time to read this! G x

DEBRA is the national charity supporting those directly affected by, and working with, Epidermolysis Bullosa (EB) – a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering. DEBRA provides lifelong care and support to the entire EB community.Together we #FightEB and together we will beat EB.