This is for all children and families at GOSH but especially for a strong determined little boy called Jak, this is his story in his families words:
After suffering from epilepsy since the age of 3 with complex partial seizures which come and go in clusters and have never been controllable with medication Jak was referred to GOSH. His epilepsy was impacting on his life, during the bad spells, Jak had to be followed about for fear of dropping ( generally it was 10-20 times a day ) and injuring himself, clubs and social events stopped as he was exhausted from them, learning in these times was difficult with seizure impact, sleep also was full of constant seizures meaning our watch over him never ended, however through it all our little trooper has carried on in mainstream school,making amazing friends and smiling at life, he's bounce up after a seizure and carry on with the task in hand never letting it beat him.
It has been a long haul of many many hospital stays and various tests, scans and monitoring but Jaks trigger area for the seizures could not be found, the team at GOSH gave us an option of Invasive Monitoring ( opening his head and monitoring direct on his brain for 1 week ) a pretty terrifying proposition to agree to for your 7 year old but faced with Jak's alternative of never having an independant life we agreed and this was carried out early Jan 2012 - the fantastic news for us was it was as successful as we could have hoped it to be, they found the trigger area, it could be removed without any damage to him in other ways so on Jan 11th he went back down to theatre for the removal of a 5cm piece of his brain which once removed had an abnormality so again adds to the hope that it caused the seizures and now its gone so hopefully so are they. It is very very early days but for now we have the relief that our boy thankfully with no other damage is back home to Scotland and his little sister Abbie, who at only 5 years old had to carry on here at home while we were all miles away with this all going on.
As a family now though we once again have lots and lots of hope that he may now be cured or at the least his seizures reduced whatever happens this team at GOSH are simply AMAZING. The care and dedication given to our son and us was wonderful and whatever happens we want to help them continue to try and change lives and cure this awful awful illness. Please please show your support in any way you can.
Thanks so much
Julie,Keith,Jak and Abbie Milligan xxxxxxxxxxxxxxxxxxx
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