Stanley's Journey
Get It Off Your Chest - Stanley's Journey
Fundraising for Cystic Fibrosis Trust
Story
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Tom, Ben and Jack Jeffery are taking on the challenge of cycling to Paris from London in May 2017. The journey will take 4 days and a lot of cycling to complete! We're doing this to raise awareness and funds for, son to Jack and nephew to Ben, Stanley-Ray Jeffery who was diagnosed with Cystic Fibrosis at 20 days old - they want to share with you his journey and as a family give you an insight on how we begin to live life with Cystic Fibrosis.
Most people don't understand what Cystic Fibrosis is, or what it does, until someone close to them is affected by it. They soon discover it's a life-shortening genetic condition - only half live to celebrate their 40th birthday.
The faulty gene is carried by over two million people in the UK, most of whom have no idea. If two carries have children, there's a one in four chance their child will have the condition, which slowly destroys the lungs and digestive system.
Most people with Cystic Fibrosis look perfectly healthy. But it's a lifelong challenge involving vast daily intakes of drugs, time-consuming physiotherapy and isolation from others with the condition. It places a huge burden on those around them and can critically escalate at any moment.
Join the journey and visit our blog where you will also find our Facebook and Twitter pages: www.getitoffyourchestcf.com
Tom, Ben and Jack Jeffery are taking on the challenge of cycling to Paris from London in May 2017. The journey will take 4 days and a lot of cycling to complete! We're doing this to raise awareness and funds for, son to Jack and nephew to Ben, Stanley-Ray Jeffery who was diagnosed with Cystic Fibrosis at 20 days old - they want to share with you his journey and as a family give you an insight on how we begin to live life with Cystic Fibrosis.
Most people don't understand what Cystic Fibrosis is, or what it does, until someone close to them is affected by it. They soon discover it's a life-shortening genetic condition - only half live to celebrate their 40th birthday.
The faulty gene is carried by over two million people in the UK, most of whom have no idea. If two carries have children, there's a one in four chance their child will have the condition, which slowly destroys the lungs and digestive system.
Most people with Cystic Fibrosis look perfectly healthy. But it's a lifelong challenge involving vast daily intakes of drugs, time-consuming physiotherapy and isolation from others with the condition. It places a huge burden on those around them and can critically escalate at any moment.
Join the journey and visit our blog where you will also find our Facebook and Twitter pages: www.getitoffyourchestcf.com