Thanks for taking the time to visit my JustGiving page.
The above picture is Finlay's happy face the day that he received a special delivery of balloons from his friends at SWAN UK with a note saying how special he is.
For over two years we have hoped to get a diagnosis for Finlay ... We are sill hoping. Although, with every test result that comes back negative, that hope fades a little. Testing is very slow - some tests take over a year. No diagnosis means no clear prognosis and worst of all - no certainty that you are doing everything you can for your precious child.
It is estimated around 6,000 children born in the UK every year have a "Syndrome Without A Name" - a genetic condition so rare it is sometimes impossible to diagnose. I am so grateful to have found SWAN UK who provide many families in this situation with support, including me.
Therefore I wish to raise a bit of money as a thank you to them by giving up my biggest treat (a glass .. or two of wine) for a month.
Mum, Margaret, has agreed to help me by doing the same!
Thank you for supporting us in this, and more importantly for supporting the SWAN family by your donation.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.