Harry was diagnosed with Cystic Fibrosis at 2 weeks old after his heal prick test showed he had got a CF gene from me and Calum, it's a day I'll never forget.

Everyday I wake up with a smile on my face, I'm so greatful to have Harry, he is so happy and content and it's him that's got us through all this. This has been the best 6 month of my life. We don't know what's in front of us, but none of us do. All I know is we have each other and the support of great family, friends and community.

The Butterfly Trust has been a great support to our family, although they are based in Edinburgh, 3 members of staff including Helen, the director who helped set up The Buterfly Trust, have all came out to offer support. We really appreciate this and that's why we have decided to do the mud run to say a big thank you 💙

The Butterfly Trust was established in 2002 to provide face to face support to people affected by Cystic Fibrosis throughout Scotland. Our services were set up to give the Cystic Fibrosis community of Scotland much needed social support in areas such as Disability related benefits, housing, employment and education.

Now in 2017 we are the leading provider of social support for people living with Cystic Fibrosis in Scotland.