Thanks for taking the time to visit my JustGiving page.

We are raising money for just 4 children to help our son Toby. Toby is 5 years old and suffered a brain  injury during labour (HIE). This means his brain was starved of oxygen resulting in a diagnosis of Bilateral Dyskinetic/spastic Cerebral Palsy. He has high tone (tight muscles) in his arms and legs, low tone in his tummy, neck and mouth and he has un co-ordinated movements making him appear clumsy. He currently needs his food pureed and liquids thickened to avoid aspiration due to poor oral motor control. His speech is not clear but he is an excellent communicator using a wide range of ways to "talk".

Due to his complex form of Cerebral Palsy independent movement is difficult for Toby and he needs equipment to help him sit/stand and walk. And due to his age he is constantly outgrowing them. He also needs equipment to carry out physio like ladders,  benches, stools, mats, therapy rolls and more. 

Toby is also at risk of limb contractures and deformities, curvature of the spine and hip problems. This is why regular therapy and appropriate positioning is so important .

To help us achieve this and give Toby a better quality of life we need money for these pieces of equipment as he continues to grow and money for private physiotherapy, conductive education and towards intensive therapy based programmes and private treatment. All of which are very expensive.

Our first goal is to raise £40,000 towards future home adaptations which We are hoping will go ahead in summer 2018. These funds will go towards a downstairs adapted bedroom and bathroom/wet room for Toby and if we are able, widen our doors in the living room and kitchen to give Toby enough space to move independently as he grows. Toby is currently still changed and dressed on the living room floor and due to only having an upstairs bathroom we are unable to help him learn to use the toilet. This space for Toby will give him the dignity and independence he needs to improve his quality of life. 

Any donation no matter how small is hugely appreciated. Thank you 

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