Alpha-1 is a condition my family and I had never heard of until recently... My Auntie Katrina sadly passed away 22nd of January 2021 at the age of 57, As it is a rare condition, it took a long time for it to be diagnosed. learning it is a genetic condition past on from parent to their child, we are all now having family screening.

On the 3rd October I will be running my first Marathon, the London Marathon. I want to raise funds for Alpha-1 Awareness in memory for my dear Auntie Katrina.

 Any contribution, no matter how small would be so gratefully received.

What is Alpha-1 Antitrypsin Deficiency?

Alpha-1 antitrypsin Deficency is a little known hereditry condition that occurs mainly in people of European ancecestry. In the UK it is estimated that ONE IN 2,500 people have this condition.It is the most common genectic cause of pulmonary emphysema and COPD in adults and liver disease in children. 

CURRENTLY- THERE IS NO KNOWN CURE

The Alpha-1 Awareness charity rely on your generosity so they can:

Distribute important support literature and advice to sufferers

Distribute important medical literature to clinicians

Make donations to clinicians researching into finding a cure

Provide support for the members.

Useful link:

https://www.alpha1.uk/