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"Amnesia, dementia, Alzheimer's. Terrible for those affected by it. My grandmother on mummies side, already showed signs that something was wrong. But the response was usually "ah, when you get older it's normal you start forgetting things". My mother was terribly afraid it would happen to her. Especially during the period when her eldest sister was struck with dementia. During aunt Maria's last year she didn't recognised none of her family anymore. Sometimes she could be quite rebellious and very verbally aggressive. Mum hated it and often got very emotionally in these situations. She sometimes made the comparison to the past when many people like aunty Maria were put into psychiatry, "the nuthouse"."
"For my parents living independently got more difficult because of their age. They had a flat on the 8th floor and the elevator was old and more defective than in good working order. My parents then lived with us at our home from 2007. In fact there were few or no problems. We all got along fine. Mum and dad usually went on a long holiday in Turkey, sometimes even twice a year. When my mum five years ago started to forget things. Slowly but surely we began to doubt. But when mummie started to withdraw herself into her own world. We knew for certain that she too was not spared. The television was her world and was firmly convinced that everyone could see her and that she could talk to the people on TV. At times it was difficult to make it clear that it was time to eat or enjoy some Sunshine outside. Then she told us that the people on TV would wonder where she had gone and stayed away so long. Talking about it was really hard and difficult. Mum Always and immediatly got in defense by saying "You all think I'm nuts, I'm not crazy you know". Probably with the threat of the nuthouse in mind."
"The neurologists, doctors and social assistants could only confirm for what we all feared so much. Mummie is suffering from dementia. Together with dad we then had to take the difficult decision to concider a residential care home. And dad was determined that they would go together. One full year they shared a room together at the unguarded "open" section of the nursing home. After that it was inevitable and too risky. It was decided to put mummie in the guarded "closed" section. Daddy finally got his own room on the 2nd floor where he is quite happy and visits mum every day."
"Describing mum's condition might be easy to put into words, but emotionally very heavy to bear. She still lives in her own world and sometimes thinks she is staying in their beloved hotel in Turkey and she's been taking good care of. She has no sense of time or place anymore. Having a conversation with mum is almost impossible. Meanwhile, mum had some unfortunate falls with fractured foot, wrist, ellbow and hip. She needed surgery a few times and on top of that she had a stroke. Her speech is affected and now conversations are no longer possible. It's really guesswork to know if she still understands the things we say or ask. We have the feeling that we are losing mummie a little bit every day. It's a daily struggle to let her go bit by bit. She now sleeps a lot more, even during the day during our visits. We feel that the moment is getting closer that mum will never wake up again."
"Having been confronted with dementia in our family and since a couple of years this terrible disease also struck my mum. I realise how hard it is to slowly see your loved ones deteriate. We concider ourselves lucky that mum still recognises who we are. But for many others it must be heartbreaking to feel like you're nothing else but just a stranger with a happy face. It can happen to all of us. Either to be the unfortunate one who gets dementia or to be left standing helpless towards those you love the most. We need to be aware of what dementia does to people. The Alzheimer's Society helps in a lot of ways.
They are the UK's leading dementia support and research charity, here for anyone affected by any form of dementia in England, Wales and Northern Ireland. They even have branches all over the world. I'm not someone who likes to talk about dementia with others. I myself am disabled, suffering from various heart rhythm disorders, including the Brugada syndrome. Stress and heavy emotions I should try to avoid at all times. I try to cope with issues and process the battle with dementia in my own way. As a leadsinger, songwriter and composer of our group "Gravity Noir" I try to express my emotions and wrote this song "Another dimension (Dementia)" and will be released worldwide on August 15, 2016. September is World Alzheimer's Month. Those who donate by using my fundraising page will receive a free mp3 & flac (Cd quality) download of the song. I hope my song will help opening the debate in the awareness that dementia is out there and can effect anyone."
When donating to the Alzheimer's Society, don't forget to mention your e-mail address, so we know where to send the mp3 / flac file of the song. If you didn't receive your free mp3/flac , don't hesitate to contact me and we will arange to send you one: email@example.com
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Kind regards and best wishes, Patrick Knight.