In June Ali, Steve and I will be running the beast that is the wolf run, a 10k woods, obstacles, lakes and fields extravaganza. Taking on bogs, lakes, natural and man made obstacles in support of Lyra. https://www.youtube.com/watch?v=yQaGO5wJj8w check it out
We would love to help make Lyra's life just that little bit better by helping support Lucy and James with the expensive therapies, treatments and equipment needed to improve Lyra's standard of life and keep her smiling.
For those of you who do not know Lyra, she is the daughter of our friends James and Lucy. Lyra isn’t even two years old and her life has already been so hard. She was born on 16 July 2012 with severe brain damage and congenital CMV – a common but little known condition, which causes jaundice, brain damage, liver problems, hearing loss and vision problems.
She was also born with Hepatosplenmegaly, which stopped her vital organs working properly and Thrombocytopenia which affected her blood and made her very ill. She is severely brain damaged as a result of the virus, is blind and has cerebral palsy.
Every day is very difficult and very challenging for Lyra. But despite this she is a beautiful, loving little girl who brightens their every moment.
We are trying to raise money for the Tree of Hope charity to help Lyra attend the Brainwave Centre and the Snowdrop programme, both specially developed for children like Lyra, where she can receive treatments and support to help her reach her full potential.
At between £300 and £600 a session every treatment is very expensive. But they will make all the difference. From improving strength and flexibility to helping with communication, the physiotherapy and treatments we’d love her to have could change everything.
Please give whatever you can to make life a little better for Lyra. She really does deserve it.
Thanks for taking the time to visit my JustGiving page.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.