Help us find a cure for H-abc
H-abc Foundation UK is raising money for H-abc Foundation UK
Team: Cure h-abc
Story
Imagine being a parent and watching your child lose the skills they fought so hard to achieve, imagine being a parent and watching your child slowly lose their life. Imagine being a parent knowing they can be saved. Please help us save them
Aggie, 11, Sofia, 9, Frankie, 5 and around 200 other children have a rare degenerative and life-shortening neurological disease. Doctors in Philadelphia may have discovered a cure. Human trials are within reach – but how can an unknown charity, H-abc Foundation UK and an unheard of disease raise the £4m needed for clinical trials?
H-abc Foundation UK is a charity that has been set up by the parents of children with H-abc Leukodystrophy. We are working with doctors that have been studying the disease and making progress. Every day that goes by is a day too long for our children. We need to do everything we can to get to clinical trials so we can save our children.
Without extra funding the trials could be too late for our children so we are asking you to help us get there sooner. The doctors are working hard to apply for grants and funding for this work and we are helping as much as we can. We have friends running marathons, cake sales, art exhibitions and more! We are now asking the kindness and generosity of strangers to help us.
We are aiming to raise around £4m to get to clinical trials, this will be a mixture of fundraising events, donations and grant application.
H-abc is a rare form of Leukodystrophy that robs children of their abilities and ultimately cuts lives short. Please see our website to read some of the heartbreaking stories of the children suffering from this awful disease. www.habcfoundation.co.uk
Your will never truly understand how much your support means to us. You are helping save our children and children of the future. The doctors are working on cutting edge gene therapy which can help so many more diseases in the future. If you would like to find out more about the science please visit our website
Any donation you can make will help save lives, thank you so much for your support xx