Story
Our Guiding Principles
The EBF3 HADDS Foundation was created to promote awareness, research, and support for individuals and their families living with EBF3 HADD Syndrome, a genetic syndrome discovered in 2016. The
Foundation is a registered 501(c)(3) and based in Houston, TX. EIN: 83-2757964
Mission:
Enhance the lives of people with HADDS through research, education, support and advocacy.
Vision:
Raise educational awareness and funding for research so that every person with HADDS:
- Has a supportive community
- Is able to reach their full potential
- Has access to the most current educational/therapy materials
- Has access to the most current research
- Ethical & Transparent: It is the Foundation’s priority to be ethically and financially responsible when advancing our mission in the areas of research, education, support and advocacy.
- Committed: We are nothing as an organization if we are not committing our energy, talents and resources consistently towards research and education. Commitment drives progress!
- Inclusive & Collaborative: Be ambassadors for inclusion, welcoming and facilitating an environment of hope, belonging and community for all impacted by HADDS globally