We didnt get long enough. 23 months is way too short for a life and yet that's all we had. Our magic boy got a diagnosis of a rare brain tumor and his sister and brother and I had to face the worst. We fought with him but lost. He gave love and smiles all the way and left happy memories wherever he went, handing out thai bites and hommous, clapping to Barney and Bob the Builder, blowing kisses and never giving up. When the end came near we moved to Helen House and allowed them into our deepest fears, to sit with us in agony and despair and then to listen to our deeply personal wishes and hopes for those last hours. We decorated his room with butterflies and my daughter baked in the kitchen. We painted plates with his hand prints and toasted his amazing love with a glass of red. We sang and we cried. We were part of their family and they were so gentle with us. But it didn't stop there. After he ran up the sunbeams, they ran Sibs clubs that his brother and sister went to, helping them with their grief and allowing them to ask whatever they needed. They organise a remembrance service each year which the staff run for the parents. Some of us come back every year...some less but it doesn't matter whether your childs name was in the remembrance book 20 years ago or two....in thru the blue gates you come and you are part of a club no one wanted to ever join...but you can put down your mask of coping and be wrapped once again in their love and support. Please help us to help them continue being there....just like that...for other families for years to come xxx Thankyou