My friends' son, Winston, has A-T which is a very rare, life-limiting disease. He was recently involved in a treatment trial and has had to endure the covid pandemic whilst shielding. Since his diagnosis his family have been supported and guided by the A-T Society.

On 20th March, my brother-in-law Jon and I are running the Hastings Half Marathon to raise money for the wonderful A-T Society to help them in their work supporting families coping with this rare disease.

Ataxia-Telangiectasia (“A-T”) is a complex genetic disease which affects many parts of the body and causes severe disability. The symptoms include lack of balance, slurred speech and more than normal infections. The A-T Society is a small national charity unique to the UK in the services it offers families. The Society’s objective has been to alleviate the distress and suffering caused by A-T. The A-T Society provides support services for families, funds research and specialist A-T clinics, and helps raise awareness.