Gareth Griffiths

Funding Hatties Adapted Bedroom

Fundraising for Sullivan's Heroes
£375
raised of £5,000 target
Donations cannot currently be made to this page
Sullivan's Heroes

Verified by JustGiving

RCN 1163021
We provide grants, support and fundraising to adapt the homes of UK disabled children

Story

Hattie melody was born with  a rare Chromosomal syndrome called Wolf Hirsch-horn Syndrome. This affects many parts of the body including low muscle tone, global developmental delay, epileptic seizures, heart defects to name just a few. 

Hattie is visually impaired and is prone to glue ear but doesn’t let these things get in her way, 

As part of this syndrome Hattie suffers from drug resistant epilepsy meaning she can have up to 30 seizures a day when medication is not working.

She is also fed over night via a feeding tube which needs constant monitoring but requires the safety of an enclosed bed. 

Hattie has already overcome so many obstacles and continues to amaze professionals with her development however she is still met with daily challenges and requires down stairs living with an adapted wet room, a safety bed and open plan living area so she can be observed at all times but be able to have her own independence in a safe environment fit for her needs. 

It is heartbreaking for us as her parents to not be able to give her all that she needs in order to thrive and enjoy her own space so that we can be confident she is safe in her surroundings.

Helping us provide this safe space for Hattie to grow would mean so much to us all as a family, not only would it provide Hattie with the safety she needs it would also mean we could take part in her play and development and be able to observe every moment which most families can take for granted.

About the charity

Sullivan's Heroes

Verified by JustGiving

RCN 1163021
Sullivan’s Heroes is a charity offering support and financial assistance for families raising essential funds for vital home adaptations for a disabled child, to continue to care for their child at home, safely and with dignity. Please support us, to build brighter futures for disabled children.

Donation summary

Total raised
£375.00
Online donations
£375.00
Offline donations
£0.00

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