I am taking part in Epilepsy Society's 60 Miles in September challenge to raise awareness for the 60,000 children diagnosed with epilepsy in the UK.

When Sam and I decided to start a family, we knew raising children would come with a whirlwind of surprises, but raising a child with Epilepsy wasn't one of them.

We’re raising money for Epilepsy Society because Ronnie, our beautiful 5 year old, lives with DEESWAS, and suspected Landau‑Kleffner Syndrome (LKS), two rare epileptic encephalopathies that affect how his brain processes language, learning, behaviour, and sleep. For our Rooster, epilepsy isn’t just seizures, it’s been loosing himself quietly but quickly and having to fight against his own brain to regain himself and the skills he has lost.

These types of epilepsy are complex (as we are often reminded), misunderstood and misdiagnosed as autism, and incredibly hard to navigate as a family.

Research allows for a better understanding, leading to earlier diagnosis, better treatment options, and a clearer future for children like Ronnie.

Epilepsy Society is one of the few organisations pushing forward the science that could genuinely change outcomes, and that’s why this fundraiser means so much to us.

Every donation supports research that could protect children’s development, reduce regression and help give a quicker and clearer path to recovery, so our children, our Ronnie, can be given the freedom and choice to be who and whatever they want to be ❤️