Harry was three and a half when we finally began to understand why he woke in pain every night, why his legs were bowed and why he was so much shorter than his twin brother. He was diagnosed with XLH, a lifelong disease that affects bone growth and development and has a significant impact on quality of life. Thanks to the work of XLH UK he now has access to life-changing medication and an incredible network of XLH patients and families across the UK. Please donate to support the vital work they do in raising awareness of this rare, complex condition and supporting those who suffer from it.