In June 2013 our youngest son Harry was diagnosed with one of the most aggressive forms of Muscular Dystrophy, Duchenne. Harry has recently enjoyed his 6th birthday like any other 6 year old. Unfortunately by his 10 birthday he will be in a wheel chair and his upper body will then begin to shut down due to this rare and painful condition leaving him locked inside his own body. As a muscular degenerative disease eventually his heart will fail, almost certainly before he is 30. The most difficult part - there is no cure, it will happen and it is 100% fatal.
The Muscular Dystrophy Campaign is the leading UK charity focused on muscular dystrophy. They are dedicated to finding treatments and cures and improving the lives of adults and children affected by the condition. As well as providing funding for world class research they also provide practical information, advice and support, campaigning to bring about change and raise awareness.
So for now we are looking to raise awareness and start our fundraising campaign. If you’ve got this far then thank you for taking the time to read why this is so important to us.
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