Henry is 4 years old, he has a rare syndrome called Rubinstein Taybi Syndrome and also Autism, he is non verbal. He had open heart surgery at 4 days old And had around 6 more operations on various other things so we owe our lives to the nhs as Henry wouldn’t be here today without them. Our hero’s! 

He doesn’t have very good balance when walking, and has a curved foot/toes so can’t walk very well or far.

But we thought it would be a good idea for Henry to start trying to push himself to walk that bit more and what better way than to raise some money for the NHS !!

Thank you for reading Henry’s story xx