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LUPUS UK is the only national registered charity supporting people with systemic lupus and discoid lupus and assisting those approaching diagnosis. LUPUS UK also produces an informative national magazine with lupus articles, letters, reports, and photographs, and operates a strong Grant Programme for research purposes and welfare.
Lupus causes the bodies immune system to go into overdrive and starts to attack itself. It is believed that over 50,000 people throughout the UK suffer with Lupus of whom 90% are female. The symptoms are many and varied, and the condition often seem to mimic other diseases. This gives rise to difficulty in diagnosis and the condition can be overlooked, sometime for years, unless the GP or consultant is alert to the possibility of LUPUS.
Symptoms can include: extreme fatigue, eye problems, joint/muscle pain, depression, miscarriage, hair loss, anaemia, facial and other rashes as well as the possible involvement of kidneys, heart, lungs or brain. There is NO CURE and patients are likely to remain under medical care with continuing medication. Lupus can adversely affect the lives of patients, their families, collegues and friends.
SLE - SYSTEMIC LUPUS ERYTHEMATOSUS - HARD TO SAY, HARDER TO LIVE WITH