This page is dedicated to the life of Jai Muirhead, who would have been so happy to know that he could help other children whose lives are affected by Spinal Muscular Atrophy. 

It has been called Hippotigerdile for Jai, after the animal in one of his grandad's stories. If you didn't arrive here from our website, you can read all about Jai, his grandad, The Dreaded Hippotigerdile and all that followed at: www.hippotigerdile.co.uk.

UPDATE - MARCH 2021
I have changed my target with the aim of securing permanent premises for SMA UK.

Spinal Muscular Atrophy, SMA, is a rare, inherited, neuromuscular  condition which, in its severest form, can affect not only movement but even the ability to breathe or swallow. SMA UK exists to support those affected by the condition and their families with information, practical help and friendship. They are also playing a major role in the search for better treatments and - one day, we hope - a cure.

We would love it if you feel able to send a donation in memory of Jai, using the 'Donate' button.

Here are some examples of what your donation will contribute towards:

£50 - provides a multi-sensory toy pack for a baby or infant with Type I SMA

£150 - funds an outreach support visit to a newly-diagnosed child and family

£2,000 - helps pay for an event where families can meet one another and build
support networks

£50,000 - funds a bi-annual residential information and support event for over 300 people

£600,000 - would help keep the charity going for a whole year!

Thank you to everyone who has donated already, via the previous fundraising site which has, unfortunately, been closed. Although your donations are no longer listed, your kindness won’t be forgotten and the money has been put to very good use.