Holly Johnstone

Holly's Walking from Preston to Blackpool and back page

Fundraising for Huntington's Disease Association
raised of £3,000 target
by 104 supporters
Donations cannot currently be made to this page
In memory of Emma Wilton
Huntington's Disease Association

Verified by JustGiving

RCN 296453


My name is Holly. I'm 23 and have juvenile Huntingtons Disease which is terminal. I inherited it from my mum Emma,  who sadly died from this at 44 . I started being her carer from the age of 6. I learnt how to grow up early. From cooking,  cleaning her,  changing her,  taking her to the toilet etc. Eventually she deteriorated so much we decided to take her to a care home round the corner. She ended up getting a wheelchair and feeding tube.  No matter how ill she got or how little she could do the second I saw her,  her face lit up and she had a huge beaming smile. She loved the little things in life having her hair and makeup done and getting flowers etc. She loved making people laugh. She was constantly telling people she's farted just to make them laugh. She died at Preston Hospital of pneumonia. A few months after I was diagnosed with the early stages of juvenile Huntingtons Disease and  I have been slowly deteriorating. My life expectancy is 15  to 20 years as there is currently no cure. But there are trials that are going incredibly well. I just want to raise money for the charity that is close to my heart that will save lives in honor and memory of my mum Emma. I just want to make her proud. And possibly help them find a cure to save my life 💕

About the charity

Huntington's Disease Association

Verified by JustGiving

RCN 296453
Huntington's Disease Association England and Wales exists to support anyone who is affected by Huntington's disease. It pursues the best possible care; provides training & advice to families and professionals; raises awareness, and promotes research towards better treatment and care.

Donation summary

Total raised
+ £450.00 Gift Aid
Online donations
Offline donations

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