On July 17 (KdVS Awareness Day) the Koolen-de Vries Syndrome Foundation is kicking off the 2020 Kool Kampaign for Research. The Kool community means so much to our family.We've decided to join forces and raise money for groundbreaking KdVS research. One hundred percent of the donations received through this Kool Kampaign will be used to support KdVS research. $70,000 is our collective goal this year. Last year our family raised $6598 and we hope to beat it this year.  A number of research projects are either currently underway or may require funding soon and Hudson is participating in 2! Last year he and Matt gave skin samples for research and we also are participating in an MRI study around seizures. While the amazing research of our doctors on all of these projects will continue, WE have the opportunity to ACCELERATE the speed at which these are accomplished. We recognize this is an unbelievably difficult season, and we appreciate your love & support of our little boy so much. No amount is too small. Read more about KdVS at kdvsfoundation.org. Thank you for your tremendous support!