Story
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Along with my brother, David, I am going to complete the Coast to Coast Walk between 4th and 20th September 2021. We are doing this in memory of our sister, Pam, who was taken from us by MND in June 2020.
Motor neurone disease is a disease that is sadly all too common. It is the most common neurodegenerative disease of midlife, and many younger people are also affected. It is currently a terminal and incurable progressive condition. Progression is rapid, with one third of people dying within a year of diagnosis. Because people with the condition generally die so quickly, only 5,000 people in the UK live with the disease at any one time. However, MND is not rare. One in every 300 people across all communities develop MND in their lifetime, and about 200,000 of the current UK population will die of MND unless effective treatments are found. (Martyn Day MP 12/07/2021)
“First it comes for your voice. Then it takes your legs. It tries to rob you of your breath.” (Rob Burrow, former professional Rugby League player, currently living with MND)
Prior to becoming ill, in early summer 2019, Pam was very active. In addition to her regular swimming and gym sessions, Pam, David and I would regularly go on long country walks together.
Then, over the following year we watched as our, previously fit and active, sister had all her physical abilities taken from her.
So now, in her memory, we are going to do the 190+ mile walk to raise funds for Motor Neurone Disease Association (MNDA). This will go to fund research into treatments and hopefully a cure for this life-limiting and ultimately terminal condition, as well as providing care and support for those living with MND and their families.
We will share information about our planning and training walks as we go too.
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