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Ami Knowles

In Memory of Grace

Raising much needed funds for Amy and Friends because I want to give back in Grace's memory

114 %
£2,055.00
raised of £1,800 target
by 55 supporters
Donate

Amy and Friends

Amy & Friends provide support for the health and well being of sufferers of Cockayne Syndrome and their families and carers. We provide an annual members retreat where families spend time in each other's company and meet leading doctors and researchers. We also provide a family support worker.

Charity Registration No. 1119746

Story

Thanks for taking the time to visit my JustGiving page.

Grace Knowles was born on the 15th April 2004 in Blackburn with Darwen UK.

Grace was diagnosed with Cockayne Syndrome type 2 aged 15months. Grace had many Cockayne Syndrome symptoms, including: having difficulty feeding, UV sensitivity, development delay, short stature, cold feet, sleeping with eyes half open, chronic vomiting, progressive loss of sight and stiff joints.

Grace never grew bigger than a year old baby, she was never able to speak and was restricted in movement unable to sit up, crawl or walk.

Despite all of this Grace was an incredibly bright girl. She constantly smiled and laughed, and loved pouting for kisses. Grace loved being around people, and everyone who met her fell in love. Graces favourite things included helium balloons, beanbags, Xfactor, having cuddles and being around her Amy and Friends family!

Grace spent her life making others happy and in April 2009, aged 4 years old she fell asleep peacefully for the last time in her Daddy's arms. She was buried 11 days later on what would have been her 5th birthday.

When we think of Grace my family smile, we remember all the love she had to share, all the wisdom she brought and all the wonderful memories we will treasure forever.

Please help me raise much needed funds for Amy and Friends Cockayne Syndrome Support in Grace's memory!

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.

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