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Grace Knowles was born on the 15th April 2004 in Blackburn with Darwen UK.
Grace was diagnosed with Cockayne Syndrome type 2 aged 15months. Grace had many Cockayne Syndrome symptoms, including: having difficulty feeding, UV sensitivity, development delay, short stature, cold feet, sleeping with eyes half open, chronic vomiting, progressive loss of sight and stiff joints.
Grace never grew bigger than a year old baby, she was never able to speak and was restricted in movement unable to sit up, crawl or walk.
Despite all of this Grace was an incredibly bright girl. She constantly smiled and laughed, and loved pouting for kisses. Grace loved being around people, and everyone who met her fell in love. Graces favourite things included helium balloons, beanbags, Xfactor, having cuddles and being around her Amy and Friends family!
Grace spent her life making others happy and in April 2009, aged 4 years old she fell asleep peacefully for the last time in her Daddy's arms. She was buried 11 days later on what would have been her 5th birthday.
When we think of Grace my family smile, we remember all the love she had to share, all the wisdom she brought and all the wonderful memories we will treasure forever.
Please help me raise much needed funds for Amy and Friends Cockayne Syndrome Support in Grace's memory!
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