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£19,080
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Inspiring Lives avatar
Inspiring Lives

Inspiring lives, supporting siblings

Funding research into siblings of unwell children for Birmingham Children’s Hospital Charity because they have significant needs, often unrecognised.

95 %
£19,080
raised of £20,000 target
by 239 supporters
Donate
  • In memory of: Katie Bryson
  • Event: Climbing Kilimanjaro, 13 Jun 2016 to 18 Jun 2016

Birmingham Children’s Hospital Charity

We support Birmingham Children's Hospital to improve the lives of sick children

Charity Registration No. 1160875

Story

We are raising money to fund research into how to support siblings of children with disabilities and create resources to do so.

Life's journey can seem like a mountain for all of us. But for a family living with a disabled member, the journey can seem that bit more difficult, lonely and challenging.

Our sister, Katie, wrote a poem when she was 10 years old about this mountain journey, a few weeks before being diagnosed with a brain tumour that left her with significant disabilities. It would also leave us - her siblings and peers - with lifelong adjustments. We had to come to terms with the loss of how life could have been if Katie had not had cancer.

Many families are walking this difficult, often lifelong, mountain journey. The needs of both the affected child or young person and their parents tend to be recognised, with some support available. However, very few people think about the siblings’ journey in all of the turmoil and struggles.

We climbed a physical mountain, Kilimanjaro, in 2016 to raise awareness of the huge mountain of challenges many families are facing. We want to raise money to fund research and resources to support the emotional and spiritual needs of the siblings of children and young people living with complex care needs. We hope to learn how to support them better on their own mountain journey.

To raise the last of the money for developing resources to support siblings and to continue to raise awareness, some of us are running the Birmingham Half Marathon this October. We would be so grateful for your ongoing support.

We are working in partnership with the Birmingham Children’s Hospital’s NHSFT, Centre For Paediatric Spiritual Care to carry out this research and develop resources.

Thank you so much for your support.



Photos

10
  • Before Katie's first brain tumour
  • During chemo and radiotherapy days +8

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