Story
I was born with a rare skin condition and although there is no cure for me, there is ongoing research being carried out on different types of Ichthyosis, which could make a difference to future generations. The Ichthyosis Support Group has been supporting families with adult and children sufferers for more than 20 years. I would like to give back and support the charity once again.
Ichthyosis is a rare skin condition in which the skin is dry and scaly. Lots of people have dry skin conditions such as eczema and psoriasis which tend to come and go. By contrast, Ichthyosis is congenital and sufferers deal with it continuously, often affecting the whole body.
The Ichthyosis Support Group (ISG) supports over 1300 people who suffer from the rare skin condition. The ISG aims to raise awareness, promote greater understanding of the condition within the medical profession and lobby for further research. The support group was formed in 1997 by a number of individuals affected by ichthyosis to create a network for sufferers, families and health professionals, and became a UK registered charity in 2001.
For further information about the afternoon tea and how you can help the support group please contact Bella Sohi on 07861 425952 or visit the website www.ichthyosis.org.uk