Help more AADC kids to get Gene Therapy just like Alex!

Ashlee & James Lo is raising money for The AADC Research Trust
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Help more Children who suffer from AADCd to get Gene Theray just like Alex did! · 28 May 2019

Teddy Wears BLUE for AADC Awareness Campaign : 27th May - 2nd June 2019. Join us in raising Funds and Awareness about our ultra RARE Brain Disease. Wear BLUE for AADC deficiency and DONATE to our cause "making a rare child healthy".

Story

3rd ANNUAL Teddy Wears BLUE for AADCd Awareness Campaign 2019 : The Gene Therapy Story This year sees our 3rd ANNUAL Teddy Wears BLUE for AADCd Awareness Campaign, dedicated to those children who are struggling every day living with the ultra RARE brain disease; Aromatic Amino Acid Decarboxylase deficiency (AADC / AADCd). In 2019 we are focusing our Awareness Campaign on the pioneering Gene Therapy treatment, received by our AADCd children. Gene Therapy is complex brain surgery that has disease limiting and life changing results. ALL funds raised by this campaign will be set aside to help families struggling with the off-treatment costs incurred whilst visiting a treatment centre that may be many miles away. NO child should ever be excluded due to geographical or financial difficulties. The Trust ADVOCATES on behalf of every CHILD in every country!

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Donation summary

Total
US$1,575.00
Online
US$1,575.00
Offline
US$0.00

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