The Gavriel Meir Trust London Cycle Ride

James Young is raising money for Action Duchenne

Participants: James Young

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Gavriel Meir Trust London Cycle Ride · 27 May 2007 ·

We have a very clear vision: a world where people's lives are no longer limited by Duchenne muscular dystrophy.

Story

On Sunday 27th May 2007, a large group of us will be cycling 75km around the City of London.

We are raising funds in aid of the Gavriel Meir Trust, which was established when Gavriel, my 5 year old nephew, was recently diagnosed with Duchenne Muscular Dystrophy (DMD); a degenerative and as yet, incurable muscle wasting disease.


*      DMD has a 100% fatality rate.
*      Gavriel is predicted to die in his late teens or early twenties.
*      He will be in a wheelchair, when he is between 10-12 years old

DMD is the most common fatal genetic disorder to affect children around the world. Approximately 1 in every 3,500 boys born suffer from DMD.  Although Duchenne is the most common fatal genetic disorder to affect children, as yet there is no cure.

Gavriel is an active, athletic child who adores life and doing everything that an 5 year old enjoys doing.  While the disease has not yet shown its devastating effects, I have to try to raise as much money as possible to ensure research is properly funded and give my nephew a chance for life!

The funds raised will go towards funding

research projects aimed at identifying a cure (and effective treatments), for this life shattering condition. The various research projects being funded by the trust are not only for the less common strain (which Gavriel has), but also covers projects that will hopefully lead to a cure for all boys who have this condition.

We need your help, and without a cure there is no hope for Gavriel, so please donate generously.

With much gratitude and appreciation

James Young

Donation summary

Total
£65,728.99
+ £2,138.23 Gift Aid
Online
£13,430.99
Offline
£52,298.00

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