Hi to everyone who has taken the time to visit my page.
My story starts on 02/07/11 when my beautiful granddaughter Lola came in to this world but 3 weeks later our world was rocked when we received the results from her heel prick test and we were told that Lola had the genetic life shortening condition Cystic Fibrosis (CF). There is no cure for CF but with the help of people like you we can help to fund the research to find a cure so no one has to suffer like Lola and all the other young people with this cruel condition ( I say young because unfortunately very few suffers live to be old !! )
5 babies are born with cystic fibrosis each week in the UK.
2 lives are lost every week in the UK to the condition.
1 in 25 of us carries the faulty gene that causes cystic fibrosis, most without knowing it.
If two carriers have a child, there is a 1 in 4 chance their baby will be born with cystic fibrosis.
Cystic fibrosis is a life-shortening genetic condition that kills thousands worldwide and is carried unknowingly in the genes of millions. It is caused by a single defective gene, and slowly destroys the lungs and digestive system. There are nearly 10,000 people with cystic fibrosis in the UK. Only half will live to celebrate their 40th birthday.
Most people with cystic fibrosis look perfectly healthy, but it is a lifelong challenge involving vast daily intakes of drugs, time-consuming physiotherapy, and isolation from others with condition, just to stay healthy.
Fighting it is a battle we must win. That’s why we are working for and fundraising for change. It’s why we must develop better treatments and, ultimately, a cure. Because cystic fibrosis is beatable.