Super Rare is fundraising to help people affected by rare bone marrow conditions. The theme for 2023 is 'Stronger Together' because seven small charities are coming together to join the campaign.
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DCAction works to improve the diagnosis and treatment of Dyskeratosis congenita and Telomere Biology Disorders. DCAction's mission is to advocate for and support people living with Telomere Biology Disorders and to raise awareness of these conditions with the medical profession and the public.
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