The Organisation for Anti-Convulsant Syndrome is a registered UK Charity founded to offer help and support to all families affected by Fetal Anti-Convulsant Syndrome.
All families are welcomed into the group with open arms, not only because we understand the problems your child may be experiencing but also because we understand the challenges experienced by the carer. Our Facebook page is a group of friendly parents that are abundant in experience and generous with information and advice. The OACS Facebook page is a great place to go if you need support or have specific questions. We also have additional support available for those affected with ‘Big Sis’, father support, support for those that have lost their children and more. With the introduction of our new community groups the OACS team want to be here for those that need us.
Gaining a diagnosis may be the highest mountain of all for the carer to climb. FACS is a complex syndrome, presenting with global disabilities, some of which result in secondary conditions. The OACS team will support you in your quest for a diagnosis, and help you understand some of the challenges you are experiencing.
We are currently setting up community groups to give help and support for families with FACS, respite, place to talk with like minded people, get information and we are also looking to arrange family holidays.
Please help support us anyway you can every little helps!
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.