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Jay Bush avatar
Jay Bush

Jay and Lisa-Marie Charity Trek

trekking the Annapurna Circuit for Cleft Lip And Palate Association because they provide invaluable support and advice.

267 %
£1,070.77
raised of £400 target
by 23 supporters
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  • Event: Annapurna Circuit, 28 Oct 2012 to 16 Nov 2012

Cleft Lip And Palate Association

We provide services all across the UK to support people affected by cleft

Charity Registration No. 1108160

Story

Thanks for taking the time to visit our JustGiving page.

We are going to be doing an unguided trek of the Annapurna Circuit (including Base Camp) in order to raise money for CLAPA.  The trek is approximately 360km and reaches a maximum height of about 5,416m / 17769ft - and we are hoping to do it in 19 days.

We first became aware of this charity when my cousin Lesley and her husband Rob found out they were expecting a baby who was going to be born with a cleft lip and palate.  CLAPA provided a lot of information to help everyone better understand what this would mean for the family, and we started to think of ways in which we could help.

1 in 700 babies are born with cleft lip and palate and CLAPA not only provides support and advice, but also supports research into the condition.

This is what it has meant to Lesley and her family: 

'We were told that our baby was going to be born with a cleft lip and possible cleft palate at our 20 week scan.  This was a total shock and we didn't really understand what it meant for our baby.  We were immediately referred to a consultant who gave us literature about the condition and information about CLAPA.  It was then that the charity became so important in our lives, it reassured us that everything was going to be alright.  We were able to read through stories from other parents, medical information and photographs of other babies before and after their surgeries.  With the growing knowledge came increased comfort.

When Max was born, we went through CLAPA to order the specialist bottles and teats we required in order to feed him.  We also joined the CLAPA Facebook site which has proven invaluable in receiving and giving support from other families affected by clefts.  The support is the most important aspect of what CLAPA can offer, knowing that we are not alone and that others have faced the same challenges and won, is inspiring.'
 
CLAPA will continue to support Max and the family as he grows and the implications of being born with a cleft lip and palate alter.

To find out more about what CLAPA do please visit their website at:
 
http://www.clapa.com

100% of all donations will being going to CLAPA, so please dig deep and donate now.  Remember, every penny helps!

 

Photos

3
  • Baby Max
  • The Trek
  • Max Now

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